History of DD Councils

State Councils were established in response to the Federal Developmental Disabilities Services and Facilities Construction Act of 1970 (PL 91-517). Hawaii’s Council was established in State Law by Act 198, Session Laws of Hawaii in 1975. The Council is administratively attached to the Department of Health. The Department serves as the Designated State Agency, providing fiduciary and administrative support. Although the Council operates in the state government, their federal law stipulates a non-interference law that allows the Council to maintain its autonomy, distinct independent role and responsibility.

Intellectual/Developmental Disability

The estimated number of individuals with I/DD in Hawai‘i is calculated using the population estimate and the prevalence of I/DD. According to the U.S. Census Bureau for July 1, 2017, the estimated population for Hawai‘i was 1,427,538. Based on the National Health Interview Survey in 1994 and 1995, the prevalence of I/DD is 1.49% (Larson SA, Lakin KC, Anderson L, Kwak N. Lee JH, Anderson D, 2001). For Hawai‘i the estimated number of persons with I/DD is 21,270.

According to Public Law 106-402 – Developmental Disabilities Assistance and Bill of Rights Act of 2000. (A) IN GENERAL.—the term “developmental disability” means a severe, chronic disability of an individual that:

(i) is attributable to a mental or physical impairment or combination of mental and physical impairments;

(ii) is manifested before the individual attains age 22; 

(iii) is likely to continue indefinitely; 

(iv) results in substantial functional limitations in 3 or more of the following areas of major life activity:  

(I) Self-care. 

(II) Receptive and expressive language. 

(III) Learning. 

(IV) Mobility. 

(V) Self-direction. 

(VI) Capacity for independent living. 

(VII) Economic self-sufficiency; and 

(v) reflects the individual’s need for a combination and sequence of special, interdisciplinary, or generic services, and assistance for a life time.